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Monday, April 1, 2013

Ode to Autism

I remember when my oldest son was asked to leave our church's preschool. He wasn't bad, he just moved around too much and he couldn't focus on quiet time. He had difficulty following directions, and he needed to lay on things because the pressure on his body helped him concentrate. He was a distraction to the class and the teachers. He has ADHD in conjunction with Autism (not bad parenting) but he didn't get the official ADHD diagnosis til later.

I remember going grocery shopping when my youngest was little and how he screamed in the freezer section, and how he covered his ears. The hum of the freezer motor was too loud for his hearing senses to process. But I didn't learn about auditory processing til later.

I remember cruel remarks from people who saw my oldest son with a chew toy in his mouth when we went out in public. I knew how to provide for my child's needs, but I didn't learn how to stand up to rude stares and remarks til later.

I remember watching my youngest son try to run... And fall down every few steps. I remember when he became capable of walking barefoot, without the support of shoes. I watched his transformation through intense occupational therapy, and he learned to run, later.

I remember a life before Autism... I remember a time when I didn't know what autism was, when it was completely foreign to me.

But that was almost 15 years ago. I've learned a lot since then.

I've learned: My sons are capable of amazing things.
I've learned: My God is with me always as I raise these boys. He is my greatest resource!
I've learned: Rude people are simply rude. It's not personal. I still detest it, but I know they own their actions, and I don't have to let it take me down.
I've learned: More about Autism, Human Nature, and Special Education Law than I can describe here. It's become part of my every-day existence.
I've learned: I must rely on God's promises. I can not do this on my own.
I've learned: I must take care of myself so I can take care of my children.
I've learned: People are inherently good. Sometimes they just need to be inspired.

Communities around the globe are rallying today to create awareness of a cause which affects my life every single day of the year.

I remember a time when no one rallied for Autism awareness. I remember when no wore blue. I remember when no one had blue light bulbs on their houses. I remember when a puzzle piece was just part of a puzzle, not a symbol for a health epidemic.

I'm grateful for the awareness we have today! As people come to understand how autism affects lives, I pray this awareness helps fund autism research so we can reach the 1 in 50. And I pray the cure comes sooner, rather than later.

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